Mike Lane Memorial Poker Run

11th Annual Mike Lane Memorial Poker Run

The Holdrege Eagle Riders or holding their Annual Mike Lane Memorial Poker Run on Saturday, June 30th, 2018. The Proceeds of the poker run will be benefiting Ava Johnson & Kash Pruitt.
Registration will be held at the Holdrege Eagles Club at 223 West Avenue. 2 & 4 wheel vehicles are welcome, buses included. Registration begins at 10:00 am and continues until 11:15 am, with Kickstands up at 11:30 SHARP! Single Registration is $15, Double Registration is $25. And an extra roll is $10.
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At just 3 years old, Ava Johnson has had a rough time since birth. She was born to Shane and Kristen Johnson of Holdrege with a rare syndrome, Holt-Oram Syndrome (also known as Heart-Hand Syndrome) which affects the upper limbs and is accompanied by a heart defect. For Ava it has resulted in multiple trips to Shriner’s Hospital in Minneapolis, MN, Cardiology appointments and therapy. Ava’s mom, Kristin, drives Ava to Kearney twice a week for Physical, Occupational, and Speech Therapy.
In January 2017, Ava was found to have a sliding hiatal hernia. Medication did not help, so in March 2017 she underwent surgery to fix her hernia, a fundoplication to prevent it from reoccurring and a G-Buttn to hold her stomach in place while it healed. In June 2017, they discovered the fundo broke and she developed another hiatal hernia. For months the specialists and her parents tried managing the hernia and her pain. In December 2017, Ava had and endoscopy to replace her G-tube with a G-J tube in hopes it would help her to gain weight, but made everything escalate. Ava was rushed once again to Omaha on December 16th, 2017 and stayed through Christmas until December 28th, 2017. She was transported once again on January 17th, 2018, but this stay was only for days. Ava has a long road ahead of her with multiple surgeries in her future, but at just 21 pounds, she is too weak for surgery at this time.
As a result of all the appointments, travel, ER and hospital visits, the Johnsons are having a really tough time staying afloat. Kristin cannot work outside the home, due to Ava’s health unpredictability. The Johnsons had no income during December and January because of Ava’s hospital stays in Omaha. They also traveled to Omaha for many of Ava’s follow up appointments.
Every day is a challenge for Ava, but despite that, she is a happy, smart and outgoing little girl!
Help is needed with lost wages, travel expenses, etc.

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Kash Pruitt, is the 10 month old son of Lacey (Marin) Pruitt and Aaron Breinig-Pruitt was born in 2017 with Hypoplastic Left Heart Syndrome (HLHS). HLHS is an uncommon complex congenital (present at birth) defect in which several structures in the hearts left side form incorrectly. It is one of several “single ventrical defect” conditions where one of the heart’s two ventricals can pump effectively. Babies with HLHS cannot properly pump oxygen-rich blood to the body, nd therefore cannot live without intervention.
A series of three operations are done in stages to establish the hearts right ventricle as the main pumping chamber and to reroute blood flow through several surgically created connections. The three operations include: The Norwood Procedure, done shortly after birth. The Glenn Procedure, performed at about 6 months. The Fontan Procedure, performed at about 18 months. Kash has already gone in for his Norwood Procedure. On March 14th, 2018, he went in for his Glenn Procedure. After this Surgery, he had a lot of fluid build up. They put a scuba mask on him to help with his breathing and had to sedate him, so he would leave the mask alone. His oxygen would still not stay up where it needed to be, so the doctors put him on ventilator. On March 18th, Kash was taken back into the cath lab, where they discovered a narrowing of his pulmonary artery. They put a stent in, but he was filling with fluid again, and his oxygen saturations were even lower than before. It was decided the Glenn was not a good fit at this time and took him back to surgery to remove it and put in aa BT shunt instead. His oxygen was still low, due to all the fluid build up, so he endured another surgery to reopen his chest and then just leave it open for a few days to allow the swelling to go down, so his lungs wouldn’t work so hard with his chest closed up. The hope is that the shunt will last from 6-12 mnths before they will try the Glenn procedure again. He has a long road ahead of him and will eventually need to have at least two more surgeries. He is currently off of the vent and scuba mask and on a hi/low flow oxygen through a nose canula and his chest has been closed, but still at Children’s in Omaha.
Mom cannot work outside the home and dad has also had to take time off to be by his son’s side.
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Raffle Tickets are $5 or 5 for $20. The Raffles include Gun Raffle, Orca Cooler Raffle, Davey Crocket Stainless Pellet Grill Raffle
Silent Auction and Live Auction will follow the Poker Ride
For Non-Participants, there is a free will donation for the meal that starts at 5:30 pm.
For More Information: Darren Mues 308-991-3699 or Mike Sisson 308-991-1746

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